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      November 16, 2014On Hearing of Robin Williams’ DiagnosisLynne Knight

      My mother had Lewy body dementia, too, a late
      diagnosis. Eight years of losing all trace
      of herself, like someone following her shadow
      into a forest that got deeper and deeper
      until it became what Thoreau called
      standing night. Her name was Knight,
       
      so sometimes I would think of her as
      Standing Night, her shadow lost altogether
      by then. Her words, her understanding.
      So when I heard that Robin Williams
      had the same ruinous disease, I thought
      what a generous thing he had done,
       
      what a courageous thing, without the help
      of drugs or alcohol or anyone, not wanting
      to implicate anyone in his death in a state
      where assisted suicide is forbidden.
      I thought if there were an afterworld
      where the soul is restored to its original
       
      form, my mother would find her way
      to Robin Williams and tell him he’d done
      the right thing, the thing she would have done
      if she’d known all she had coming.
      But I don’t believe the soul continues.
      The spirit lives on in the hearts of others,
       
      so Robin Williams will live as close
      as it gets to forever. As for my mother,
      she’d be content to know how much
      my sister and I miss her, how we still
      talk to her, how we rely on her wisdom
      to stand us by on darkest nights.

      from Poets Respond

      Lynne Knight

      “When my mother was diagnosed with Lewy body dementia in January of 1999, there were only four or five websites that had any information about it. But now it’s recognized as the second-most common form of dementia, after Alzheimer’s. Because I believe that had my mother known what she had coming (she was diagnosed four years into the illness), she would have committed suicide, I was deeply moved by this news about Robin Williams. I’m glad he was able to stop the disease before it turned him into someone not himself.”